Trying to get my life back this year

Well I have not posted on in a while. So have thought about what is new. I am on 5th month on this new medicine “Tysebra”, been going in first of each month for an infusion. So far it’s been going great can walk on my own in short distances. My thinking a lot clearer, fog has lifted.

I have been thinking on the future, been lost since I came down with MS. I have always worked my whole life, took a lot of pride in what I did. I started out in a career as a HVAC technician, had a knack for it. Spent a couple of years doing this, and then went into industrial refrigeration. From there started working as a industrial electrician. I spent the end of my career there. My last project I was over designing and setting up a large almond huller plant. I was really proud of this job, had touch screen controls. By the time I was done wrote over 700 pages of code.

Now all I do is sit around in my wheelchair, watch TV trying to figure out what to do with my life. After my fog cleared, had to think about what was bothering me, what always made me feel good was that I could make a difference no matter what I was doing. Felt like I was a good husband, could always provide for her, and spoil her as much as I could.

My wife said I should write a children’s book, since I was always telling tales about what are dogs have done. So I set down and wrote me a book “McWinkleBean Island” I know it don’t sound like much, but felt like a big accomplishment to me.

So now I decide what to do with it. Have some ideas how I might publish it myself using the local office supply, my wife think we can do the binding our selves design and make the cover. Do readings for children at all the local libraries, elementary schools, and the surrounding hospitals children’s ward.

Exciting weekend

This is probably minor to most, but this weekend was able to walk on my own without any help wheelchair, walker, or wife.

my neurologist has put me on a new medicine treatment for MS (Tysebra), where I have to go in to cancer center each month for a infusion. a lot better than the other medicine where I had to get a shot once a week, had horrible side effects, plus continued having MS attacks one right after another.

made a r5eally good friend on here, she made my day