There is no day or night without any pain but Hannah says that she can stand it most of the time. Actually she wakes up between two and five times during the night and calls for her homeopathic medicine. Thanks God she is able to fall asleep again very soon so that she is relatively good rested. For a year now she spends the whole night in her own bed.
Hannah says that the pain is best during school because there she thinks of so many other things that she forgets about it. By the way the bi... read more

I) Welcome
Thank you for giving us such a worm welcome to the tribe. It feels good to share our experiences about CED with you. We have been trying to contact other patients but until now have not been successful. This condition is so rare, the doctors do not know much about it and too less research is being done - all in all we often felt like our daughter is the only person in the whole wide world that has to confront this painful condition. Reading your messages helps us to see that she i... read more