Name: Niki Rakowitz
Approx Height: 5ft 4ins
Approx Weight: 155 lbs

1) How old were you when your symptoms began and what were they?
I had a "waddle" to my walk, and was very underweight for my age. I was always extremely weak and tired, intense pain in upper legs, and slept alot.

2) At what age were you diagnosed with Engelmann's?
I was in High School about 15yrs old when I began having severe pain in both my upper legs. I was not diagnosed until I was 18 years old. After many... read more