Some time back I wrote a blog entry about my health and how hard I was finding it to accept my situation. I just wanted to update this blog with how things are going now. Over all my health is still the same. I still have all the pain, tiredness, nausea and brain fog. I still find day to day life annoying and restrictive. I still have a million and one plans and aspiration running around in my head and I still wish I could gain a better level of balance of my condition, but I am learning to l... read more

Summer is finally here, so last weekend we packed up and went to Poole for the Southern Lights Festival. The word "went" makes it sound so simple, but it was a bit of a stress filled day on the Friday, as after loading up the van with a stall, 107 hoops, boxes of Pirate Pixie Crew hats and camping gear, we couldn't get the van to start. We had to try jump starting it, which worked, but as the engine revved the exhaust fell off! The damn thing had rusted through completely and wasn't going to ... read more

I'm so damn sleepy today. I got up at 6.30 to see Jon off to work and then I came back to bed, but couldn't get back to sleep because Weapon X decided he was going to hassle me for food, even though he had already been fed. I now find that it's nearly 4pm in the afternoon and I'm so tired I could just go to bed and sleep. All I've managed to achieve today is to sew up a hat I knitted yesterday and tape 2 hoops. Other than that all I managed to do is lay on the bed yawning and trying to stay a... read more